In honour of Harvey Hext !

Fantastic effort for a fantastic cause

A Charitable Direction

Harvey Hext was a wonderful little boy. He was full of cheekiness and loved to cause mischief with twin brother Spencer. Harvey had Down syndrome.


In 2010 at the age of three, he was diagnosed with stage 4 , high-risk neuroblastoma, an aggressive form of childhood cancer. His parents David and Sarah soon discovered that there were no other cases in the world of a child to have both neuroblastoma and Down syndrome.


In 2010, Harvey’s parents, Sarah and David noticed that Harvey was walking less and less, unusual for  the previously active 3-year-old. He also  had diarrhoea and was complaining of tummy ache. Doctors told the family that they couldn’t find anything wrong with Harvey  and if they  were still concerned  they should seek advice from their local hospital. That’s what they did. A simple blood test was enough for the doctor at that hospital to refer Harvey to the clinical investigations unit in Bristol. On 20th June…

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